People with diabetes may feel stigma because of their condition. This can affect how well they manage their diabetes.
Living with a chronic condition like type 2 diabetes can bring judgment, shame, and blame on yourself and from other people.
This stigma can be based on false beliefs stemming from a lack of information, misconceptions, or myths within society.
Research shows that stigma around type 2 diabetes can cause people to feel excluded, rejected, or blamed for having the condition.
Stigma can be internalized, as well. You may feel ashamed about your condition or blame yourself for having it in the first place or for not doing the “right” things to manage it.
These feelings can impact your mental health. They can also make it challenging to take the steps needed to manage type 2 diabetes.
People with type 2 diabetes
The most common cause of stigma is the belief that diabetes is a character flaw or personal failure.
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However, this is not accurate because
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This stigma may lead you to blame yourself if you’re not meeting your blood sugar goals or if you need to start or change medication to help manage type 2 diabetes. You may feel as if you’ve failed.
It’s true that diet changes and exercise can help you manage type 2 diabetes.
But this is a driving force behind type 2 diabetes stigma: the blame and shame mentality that assumes you haven’t eaten “right” or exercised enough.
Some factors that impact diabetes management, such as age or genetics, are out of your control.
And type 2 diabetes is a progressive condition, which means the steps you take to manage diabetes may not always work. You may need to adjust your treatment or management plan over time.
Sometimes diabetes simply is resistant to treatment. You can do everything according to your doctor’s instructions and still not get the results you’re looking for.
Other times, you may be able to hit your A1C target and reduce your chance of complications. However, the people swayed by stigma may not understand the work you’ve put in or the progress you’ve made.
Myths are ideas that are widely believed but often incorrect. Stigma can result from myths.
Myth: People cause their diabetes by making poor choices
Weight and activity levels are only part of the reason some people develop type 2 diabetes.
Research shows that genetics also play a significant role, as well as family medical history, age, race and ethnicity.
Even if type 2 diabetes is linked to excess body weight, this weight gain and subsequent diabetes symptoms may be due to causes that aren’t connected to diet and exercise, including:
There are many reasons not connected to lifestyle that a person may develop type 2 diabetes.
Myth: It’s your fault if your blood sugar level isn’t in your target range
When you live with diabetes, there are factors that affect your blood sugar that you may be able to control some of the time. These include:
- eating choices
- exercise
- hydration
- oral medication
- insulin therapy
- sleep schedule
Even these controllable elements can present challenges.
Not everyone has access to healthy, affordable food. Some people have medical conditions that make exercise more challenging, and the cost of diabetes medications and supplies can be prohibitive.
Stress and life events can also disrupt sleep or change your sleep schedule unexpectedly.
Aside from this, there are other factors that can influence blood sugar levels that may be out of your hands, including health conditions such as thyroid and insomnia.
At times, blood sugar can be unpredictable and difficult to keep in range for anyone living with diabetes.
Myth: People with type 2 diabetes need insulin because they haven’t managed diabetes well enough
Diabetes stigma may be more likely with those who take insulin. This may be due, in part, to the misconception that needing to take insulin means you’ve failed at managing type 2 diabetes.
Type 2 diabetes is a progressive condition. This means that the previously worked treatment may no longer be enough to manage your blood sugar as time goes on.
Some people with type 2 diabetes will eventually need insulin, while others won’t. Disease progression is different for everyone. Whether you need insulin may not have anything to do with how well you’ve managed your condition.
If you’ve ever felt like type 2 diabetes is taking a toll on your mental health, you’re not alone. Stigma and the shame and blame associated with it can cause people living with diabetes to feel stress and depression.
It may also cause emotions such as:
- guilt
- anxiety
- fear
- embarrassment
- low self-esteem
In addition to having mental health effects, stigma can interfere with how well you manage diabetes.
Feeling stigmatized may make you less likely to take the steps needed to manage type 2 diabetes while in public. For example, you might not want to check your blood sugar or insulin pump when you’re around other people.
Injecting insulin while others can watch might make you feel self-conscious, which might lead you to delay or skip your dose.
If you’ve ever felt criticized by a healthcare professional, you might be tempted to delay important checks like A1C tests, eye exams, or bloodwork to assess your overall health.
Diabetes-related jokes — everything from weight management to food choices — can hurt and lead to stigma that affects your diabetes management, possibly leading to less of an interest in managing your health as well as you could.
People with diabetes are
You may also experience diabetes burnout. This occurs when you feel stressed, overwhelmed, or emotionally drained by the daily care required to manage diabetes.
Dealing with stigma and the feelings of shame and blame that often go along with it can also affect your mental and emotional health.
If you’re concerned about the impact of diabetes on your mental health, ask your doctor for a referral to a mental health professional.
They may recommend therapy, such as talk therapy or cognitive behavioral therapy, to help you deal with the mental and emotional challenges of living with diabetes. They may also prescribe medication to help treat depression or anxiety.
The first step to overcoming stigma is recognizing that it exists and is based on inaccurate information. It’s not your fault if you have type 2 diabetes.
As you learn more about type 2 diabetes, you’ll better understand how to support your health and prioritize self-care.
There’s tremendous value in connecting with others who share your experience, whether in person or an online support group. Now’s your chance to meet new, like-minded people.
You can consider joining the American Diabetes Association’s online support community or visit diaTribe’s dStigmatize page for more information and resources.
Diabetes and mental health
Learn more about how mental health is a key part of diabetes management, how it affects blood sugars, and how your A1C result may be affected.
The stigma around type 2 diabetes can cause you to feel judged, ashamed, or guilty about having the condition. This can impact your mental health and may discourage you from taking the steps needed to manage the condition.
Finding ways to overcome stigma can help improve your mental health and your diabetes care. Educating yourself about the condition, joining a support group, and talking with a mental health professional can help.