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Bezzy members are excited to meet you, share advice and stories about their experiences living with crohn's & colitis. Join a judgment-free space with a free profile.

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Happy Thursday! Welcome to a vent event. Need to blow off steam? Feel free to share what's on your mind here. For fun, what are you up to this weekend?!
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This Wise Little Narwhal Has Something to Teach Us All About Invisible Illness

This Wise Little Narwhal Has Something to Teach Us All About Invisible Illness

Migraine representation in children's books is important for everyone, not just kids.

February 21, 2025

by Clara Siegmund

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The Psychology of Misinformation: Why We Buy into BS

The Psychology of Misinformation: Why We Buy into BS

The internet means everything is at our fingertips, even misinformation. Here's why it spreads, plus how to protect yourself and your community.

February 21, 2025

by Stacey McLachlan

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10 Ways to Find Support When You Live Alone with Chronic Illness

10 Ways to Find Support When You Live Alone with Chronic Illness

Living alone with a condition can be challenging, but there are people who want to help.

February 21, 2025

by Beth Ann Mayer

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Personal Community
All: Many may not have access to below, but WSJ article title says it all. As we know, most/all insurance companies reject claims on occasion, with the assumption that most won’t endure the (at times) stressful process of refuting. A pathetic, yet effective business model, which saves them hundreds of millions annually. Further reason to stand up for what is just, should you be erroneously billed or denied access to meds, etc. With the help of my GI, I’ve successfully appealed my insurance company denying my continuation with branded Remicade vs a biosimilar for the past 5 years. These days, aided by ChatGPT or similar, the rejections are sent with very little review or consideration for their “client’s” particular circumstances-as easy to forget they are supposed to work for us. That’s how I look at it. Same with my doctors. Something to consider.
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3 replies1 like
Casual Conversations
@Alexa and Bezzy community: I think it would be helpful if we have a Post folder, entitled “IBD Articles” or something similar. “IBD, The Written Word.” I don’t know, but think you get it. Anyhow, so many great articles/studies, etc. out there that are shared(some by me, some by others, great originals by Alexa!), that may not get the views as a result of perhaps being located in the wrong spot(I know that I’ve been guilty of that!)- or a new post quickly covers them. I think if housed in one specific area, with the appropriate heading, it would reach far more of the community- who can review in real time, or at their convenience. I personally have learned so much about IBD, through reading and feel a designated area to find those resources would be a great addition.Perhaps could even serve as a weekly evening chat topic(IBD in the news). Sure, you can tell a slow afternoon at work for me and too much coffee- but hopefully some logic there. Something to consider, in any case. Enjoy the weekend!
1 reply1 like
Diet and Integrative Therapies
My wife made a new vegan desert tonight and it was awesome. It is sweet potato brownies from scratch. They are rich and yummy. I had already taken a bite. lol
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4 likes
Medications and Treatments
Update week of 2/17/25 I felt I was declining on Saturday and decided to go to the ER. I'm happy I did because they ended up finally admitting me. I had been wanting to be admitted for a while because I felt the vancomycin wasn't working. It's my second time being admitted to a hospital, and let me tell you, I do not miss it. I was alone this time however. The first time, my mom was with me, but now I go to college away from home, which is like a 6 hour flight from where my mom is. Monday was absolutely insane. I lost around 200ml of blood. Seeing all that much blood in the basin was nerve wracking. I started crying but was able to do some breathing exercises to calm down before I got too frantic. Then all the doctor came in and that's when I realized how real everything was. I don't know. I seem to have been living through a filter the past couple of weeks, so I didn't really have much reactions to anything regarding my health until now. The doctors started me on IV methylprednisolone and included the antibiotic flagyl, as well as the vancomycin. I'm not testing positive for c. diff. anymore so I guess that's one positive thing. They hope by day 3 of the steroids I should start seeing improvement, and if not then by day 5. If I respond well they'll start me on Entyvio in-patient, if not they'll start me on Remicade. Are any of you on Remicade? How long do you stay in remission? Same question for Entyvio.
1 reply1 like
Live Chats
Happy Tuesday! Tonight’s chat is all about SUPPORT. Join to give or get support. Let’s help each other! For fun, do you have a favorite board or card game?
2 replies2 likes
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